Contributed by Azalea Charities
Prince William, Va. (November 28, 2013) – Azalea Charities, as part of its mission to support the local community, announces the kickoff of the John Paul Storey Project, a fundraising campaign to build a home addition for the Storey family of Culpeper, Virginia to help them with the long-term care of their special needs child. John Paul Storey was born with a rare condition called thrombocytopenia-absent radius (TAR) syndrome that will require a lifetime of special care.
Arriving on March 11, 2013, John Paul is the fifth son born to Jill and Patrick Storey of Culpeper, VA. As a TAR Syndrome child, he has abnormally short arms and is missing his radius and ulna bones. His right leg is fixed with no joint separation at the knee. He is an adorable baby born into a loving family who is prepared to give him the care that he needs to live a happy life. The Storeys found out that their child had TAR before he was born, and consider themselves blessed with a son whose unique individuality will become an integral part of their family lifestyle.
Russ and Cathy Carolla of Prince William County and close friends of the Storey family approached Azalea Charities Chairman Frank Lasch asking for help raising funds. It did not take much coaxing to get Azalea Charities on board, since they are actively involved in many causes that impact local families. Together, they formed a committee that has provided financial support to help relieve the costs of travelling back and forth to Charlottesville for specialized medical treatment as well as a laptop computer to help Mrs. Storey deal with the demands of John Paul’s medical care, record information beneficial to John Paul’s condition, and stay in contact with her family and friends.
With five sons and the challenges of a special needs child, the committee quickly realized that the Storeys need more space. The John Paul Storey Project was conceived to construct a 1400 square foot addition onto the Storey family home in Culpeper, Virginia. The concept includes added living space, with a bedroom designed for John Paul’s special needs, widening of space to allow wheelchair access, and outdoor ramps for front and back access.
Azalea Charities was quick to bring on Construction Manager Rod Caulkins of Caulkins Construction, who is actively involved in community projects, including a recent home addition for injured Marine Corporal Josh Himan and scholarships for GED candidates. Architectural designer Ann Null joins Rod, with their efforts supplemented by donations of labor and materials from local businesses. Rod looks forward to this project, “I had the pleasure to work with Azalea Charities on the Himan Project and was rewarded with the chance to see the community come together in support of one of their own. A wounded Marine gets to come home because you built an addition to his home that will make his life a whole lot easier – it puts a lump in your throat if you know what I mean, even still today. When the chance to help the Storey family came along, I knew I would be 100% committed.”
The John Paul Storey Project Committee contacted Alexa Fritz, of the Culpeper County Board of Supervisors, and met with the County Administrator, Frank Bossio, to discuss this endeavor. After hearing the plans, Bossio commented, “Culpeper County is proud to support this effort to support its special-needs citizens, and applauds the community support for the Storey family.”
Caulkins says he hopes to start the project by March 2014 once the necessary fundraising goal of $150,000.00 is met, “If we can get a combination of funds and in-kind donations put together by January we can start on time and finish by June.”
If you would like to donate cash, services or materials to the John Paul Storey Project, visit the Azalea Charities website at azaleacharities.com. You can also see updates and photos of the building as it progresses. For further information please contact Frank Lasch, Sr. at 703-670-5238 or by email at [email protected] .
Azalea Charities is a 501 (c) (3) non-profit organization headquartered in Prince William County, Virginia. The organization is staffed entirely by volunteers who donate their time, talent and money. Azalea Charities raises funds for its community charities and Aid for Wounded Warriors through membership fees, private donations and sponsorship of Team Azalea Charities in the Marine Corps Marathon and the Azalea Classic Pro-Am Invitational Golf Classic, the organization’s keystone event held annually at the Piedmont Club. Beyond minimal expenses, all the funds they raise go to their charitable core causes. For more information about Azalea Charities and Aid for Wounded Warriors, please visit www.azaleacharities.org
Information contained on this page is provided by an independent third-party content provider. Prince William Living Inc. and it’s staff make no warranties or representations in connection therewith. If you have any questions or comments about this page please contact [email protected]